What will I do as a patient, carer or member of the public involved in research?

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Activities and tasks – many of which are carried out with researchers – might include:

  • Helping to decide what research is carried out – sometimes called “research priority setting”
  • Attending focus groups to agree how to carry out a research project
  • Helping to design a clinical trial or other study so that people will want to take part and that e.g. the numbers of hospital visits don’t make this too demanding
  • Reading, commenting on, writing or re-writing information for patients about a research project
  • Being on a committee or panel that meets to monitor the progress of a project – this may be in person, by phone or email