Is there a difference between involvement, engagement and participation in research?

Yes, although they are linked and one can lead to the other:

  • Patient and public involvement is the development of partnerships between patients, carers or other members of public and researchers. Such partnerships are made in order to influence what research is done, how, and what happens to the results. The main purpose of this website is to encourage patient and public involvement in research.
  • Patient and public engagement is the sharing of information and knowledge about research by professionals, such as at open days, science festivals or through newspapers or other media.
  • Patient and public participation is the recruitment of patients or others to take part in clinical trials or other research studies, which may include activities such as undergoing physical tests or completing a questionnaire or participating in a focus group as part of a research study.