Do I have to be a patient to get involved?

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No, although most if not all of us are or have been patients. Different studies need different sorts of input; as you will see from the opportunities on this site, some projects are looking for patients with a given condition, or their carers, while others are not necessarily seeking input from people who have been ill. It can be very valuable for researchers to have help on aspects such as the language that they use from people who are not in their professional world, but they may not need to have experience of a given condition.

If you are thinking about participating in a trial or other study but are not a patient, you may be welcomed: some trials and studies need “controls” – healthy individuals – to compare test results with people who have specific conditions.