People impacted by Parkinson’s wanted for survey

Background In 2014, the James Lind Alliance and Parkinson’s UK set up a Patient Setting Priority group to find the top 10 research priorities that people living with Parkinson’s (PwP) and health and social care professionals would like to see answered. This was published in 2014 by Deane et al. The … [Read more...]

Research study recruiting – The Role of Nicotinamide in Mitochondrial Biogenesis

We are recruiting patients with the following profile: 18-70 years, male or female Mitochondrial disease caused by a single mitochondrial DNA mutation, as well as a diagnosis of Progressive External Ophthalmoplegia (PEO) and exercise intolerance or Mitochondrial disease caused by the … [Read more...]

Do you have Myasthenia Gravis or Auto Immune Encephalopathy, or have you got experience caring for a relative with either of these conditions?

We are looking for one or two people to work with us to develop information for patients who will take part in a small research study to find out the effects of plasma exchange in the immune system, in addition to improving your symptoms. An autoimmune disease develops when your immune system, … [Read more...]